Sunday, January 11, 2015

Why I have a love/hate relationship with Red Band Society


Hey y'all!
Now I know all y'all have heard and/or seen the show Red Band Society because hello it features a boy with Cystic Fibrosis! This is huge for us. I for one was super excited that Cystic Fibrosis was being publicized.

What a Disappointment.

Now don't get me wrong, I did love the show. The whole teens spending their lives in the hospital struck close to home for me. I did enjoy watching it but I could not help but get so irritated every time Dash came on screen.
For all those who have not seen the show, Dash is an African American teenage boy with Cystic Fibrosis. Apparently he is in the hospital waiting for new lungs.

Now maybe its just me and my experience with CF, but this show and how they represent it makes it seem like CF is nothing. The writers of this show obviously had no idea what CF is except what they could get off of google.
Now some of you might not agree but frankly this is my opinion and my blog so whatever.
This show makes being a teen with a disease as glamorous when in reality it is not.
My teenage years in the hospital and being sick were a little different.
My hospital room wasn't huge with beautiful decorations, color everywhere, and big windows.
My nurses were nice and wonderful, but they didn't take me to the dances I was missing or come rescue me from a party that I snuck out to attend.
I did not have a group of friends to hang out with to pass the mundane hospital days.
I was alone most of the time, watching movies in my room. Sometimes a child life person would come hang out and play or game or even bring me a video game system.
I certainly wasn't hiding in closets smoking weed.
These teens are just too happy, too healthy looking, too everything.
Not that sick kids cannot be happy, I always try to smile, but being a teenager with a disease is hard sometimes.
It is sometimes being depressed.
It is understanding that no one understands what you're going through even though they "try."
It is going through a multitude of medical treatments a day and tons of pills.
Simply put it is way more than this show portrays and that's why it frustrates me.
It is more of a fun boarding school than a hospital with seriously ill kids.
Being sick is not glamorous, and it is not fun.
This is real life for so many people and to see it shown like it is one big party is a slap in the face.
I know that this is purely for entertainment but I don't want people thinking CF is nothing because of this show. It is not just CF, all of the diseases shown are downplayed, but I can only speak for CF.

11 comments:

  1. I hear what you have to say and I think it's important.

    You should write to the show's creators.

    As a person living with CF in the real world, your voice should be heard.

    Hollywood, the entertainment industry - so much of their 'truth' isn't true at all.

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  2. I'm married to a CFer that feels the exact same way. He pauses the tv every time Dash is on to point out the inaccuracies. It has become a game for him.

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    1. That's too funny! I do the exact same thing. I think my friends get tired of it!

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