Coughing up blood vs. breathing

Hey y'all! I have not been feeling well lately. For the past two weeks I have been coughing up tons of blood. Pure blood with no mucus. By tons, I mean I have been filling up the bottom of a bathroom sink with it. It only happens when I lay down to go to bed. I start feeling a bubbly feeling, almost like a wheeze that is when I know the blood is coming. Then I have to cough and up it comes. I coughed up so much the other day that I could not stop and was actually choking on the blood. It was gross.

SO... my doctor decided that it might be from the Colistin I started, so she took me off of it for a week to see if that helps. She also had me stopped hypertonic saline at night to see if that helps as well.

I went to the doctor Tuesday and it is now Thursday...so after only two nights of not doing Colistin or hypertonic, my lungs are not happy. I can barely breathe. My chest is tight and hurting. I cannot imagine a whole week of this.. To be fair though, the coughing up blood did stop. I almost think I would rather just cough up blood than feel like this. Funny how that is.

If I had continued to cough up blood, my doctor wanted to possibly do a CT scan and a bronch but so far...no blood! I also had an x-ray done.

In other news, my doctor wants my decision about which transplant facility I want to use so they can set up a meeting for me to just talk with them!