I have not been feeling all that great lately again unfortunately. I can't catch my breath and my pulse ox is running 88-91. So to make things simple....I just want to lay in bed all day and sleep. That seems to be the number one thing that people without CF do not understand. They do not understand that we are not being lazy. We simply need days to catch our breath. Even my friends do not understand. They say I need to get out more and get up and do something and to stop being lazy. Even if I explain that I do not feel good, they seem to think that getting up and doing something will magically make me better. In other words....they just think I'm being lazy. It is really aggravating. Especially since they do not understand. This is coming from people who stop their whole lives for a cold. So this is a note to those people who think I'm lazy:
Dear people who just think I'm being lazy,
Please do not pretend to understand how I feel and then criticize me. Sometimes I do not feel good. Sometimes my oxygen is low. Sometimes I'm so sleepy that I cannot get out of bed. Sometimes I cannot breathe and have cough attacks that leave me gasping for air. I am not being lazy. I am not "pulling the sick card." I am sick. Sorry that you do not understand that. Unfortunately I barely have good days. I do not bother you when you lay in bed for days because you have a cold or when you complain loudly when you cannot stop coughing from the cold. Why must you bother me about what I do? Just leave me be, let me have my sick days, my "lazy" days. I do the best I can. I can promise you there are days when I feel like absolute crap but I am still out there going to class, walking tons, cleaning, making dinner, babysitting, all without complaining. You have no idea what it feels like to have to stop and rest after walking for a couple minutes because you're out of breath. You focus on you and I will focus on me.