Hey y'all! So one thing about me is that I eat, a lot, like a lot a lot. You would not be able to tell by looking at me but I could probably out eat any one of you. I am constantly starving and can eat like two grown men. I just cannot seem to gain weight. So the doctor's put me on Periactin which is an appetite stimulant. I am going to go broke just buying food to sustain me. I'll probably eat myself out of a house and home. Did you know periactin is also an antihistamine? Weird right? It makes me a tad tired. I'm also trying to drink at least one scandishake a day to up my weight.
I'm not sure how many of y'all have sinus issues but I have them and they bother the heck out of me. My ENT says to try doing my TOBI and Colistin with a mask to get the antibiotics in my sinuses as well. So maybe that might bee something for y'all to try as well, but of course I'm no doctor. Some of my sinus cavities are getting gross again so I'm also taking a nasal steroid. This will be my first month trying Colistin. Has anyone else used it before? How did y'all like it? I've tried Cayston before but it made me cough up tons of blood so I had to stop using it.
Let me tell y'all one thing about doctor's that just annoys me. You fill out all this paperwork right? You have to write down every single medication you take, then you go back and they ask you the same thing. I'm just always like ugh really and repeat them all over again.
I got to spend the weekend with my boyfriend who I'm ever so thankful for. But....everything went downhill yesterday. I took my car to Wal-Mart (which was my first mistake) to get an old change. It took them 3 and a half hours! There were barely any other costumers there, just one other. I should have expected that I guess. Wal-Mart is the home of 30 something registers and they only open 2 at a time. The oil change cost me $74 which hurt my pockets. I was also told I needed a new battery which is another $105. My poor college kid pockets are getting emptier and emptier. After all that, I go out to my car and it doesn't start. The guy says "well the car won't start because the battery is bad" no really? despite his comment, he brings the jumper cables and a battery out to jump my car off. He hooks the cables to my car, but had the other two cables hooked to the metal cart which promptly started to spark and almost electrocuted him. So I am done with Walmart. I shall find a new place to do my auto care.
Sorry this is kind of a rambling post. I guess y'all are used to that by now though.
Just a post grad with Cystic Fibrosis trying to make it through this crazy life.
Showing posts with label sinus. Show all posts
Showing posts with label sinus. Show all posts
Tuesday, March 25, 2014
Saturday, July 13, 2013
So it has been awhile....
Looking back on my last post I realize it has been forever and a day since I have blogged. So much has happened in my life that blogging just kind of took a backseat. I switched schools again...I know, I know... so indecisive. I'm finally at a college for good. I'll be starting my junior year soon...so excited! My boyfriend and I broke up for a couple months but recently reconnected and started dating again. I spent time with old and new friends. I've had the time of my life. I've experienced so much and learned so many lessons. I even went to Dayglow or Life in Color as its now called. So fun!!!
My semester ended and then I went to have sinus surgery performed. My doctor recommended I go to an ENT who then decided sinus surgery would be the best thing. They were both under the assumption that bacteria in my sinuses were reinfecting my lungs causing exacerbations. They thought maybe it would help my CF. It seemed like a simple procedure. The ENT even said that I would most likely keep getting the procedure because I wanted it! He said it would make me feel so much better. The place I had my surgery at was two hours away from my home. I arrived and got prepped for surgery. I went back and they started putting something through my IV, not sure what but it made me very calm. I heard the doctors talking but couldn't really understand. A surgery that wasn't suppose to take very long ended up taking several hours. In recovery my mom was told they wanted to transport me to a hospital. My doctor from home called my mom and let her know my oxygen was low before surgery and dropped pretty low during surgery. None of the people at the surgery place bothered to tell us before or during the surgery. Needless to say I went home that day, not the hospital, but was on oxygen for weeks after the surgery. My functions plummeted from the 50s to the low 30s. I was in bad shape. I had to go in for a PICC line a couple days after.
The sinus headaches never went away and I never felt better. My functions are back up but I would not consider getting the surgery again. I recently had to go back to the ENT where they removed scabs from inside my sinuses. If you look close you can see the red light shining through my mouth, nose, and eyes.
I wonder if anyone else had an experience like mine. I am going to get back on my blogging game. I just feel like my life isn't exciting enough to blog all the time but I'll try.
I wonder if anyone else had an experience like mine. I am going to get back on my blogging game. I just feel like my life isn't exciting enough to blog all the time but I'll try.
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