College and ports

Hey y'all!
So as y'all know from my last post, I have not been feeling well at all. I ended up going to the doctor's Monday to get a quick check before I started school Thursday (TOMORROW!!). My numbers were the lowest they have ever been. My pulse ox was also 92% and when I did the walking test, it dipped down to 87%. My weight dropped too (of course). Well I was put straight on antibiotics through my port. So I am starting my senior year of college with a port, not that this will be my last year at college haha.

I am so excited to start school. I sound like a total nerd but when you have to miss school, it makes you want it more. Although I am classified as a senior, I still have more than a year left at college. It is fine because I mean if you don't take forever to graduate then are you really even doing college right? Just kidding, I would be graduating had I not decided to transfer and change major but you win some, you lose some. I am just a little concerned walking to class because I think I might actually collapse on the sidewalk. I have no energy and can not catch my breath. We will see!
See y'all next time!

Dear People Who Think I am Lazy

Hey y'all!
I have not been feeling all that great lately again unfortunately. I can't catch my breath and my pulse ox is running 88-91. So to make things simple....I just want to lay in bed all day and sleep. That seems to be the number one thing that people without CF do not understand. They do not understand that we are not being lazy. We simply need days to catch our breath. Even my friends do not understand. They say I need to get out more and get up and do something and to stop being lazy. Even if I explain that I do not feel good, they seem to think that getting up and doing something will magically make me better. In other words....they just think I'm being lazy. It is really aggravating. Especially since they do not understand. This is coming from people who stop their whole lives for a cold. So this is a note to those people who think I'm lazy:

Dear people who just think I'm being lazy,
Please do not pretend to understand how I feel and then criticize me. Sometimes I do not feel good. Sometimes my oxygen is low. Sometimes I'm so sleepy that I cannot get out of bed. Sometimes I cannot breathe and have cough attacks that leave me gasping for air. I am not being lazy. I am not "pulling the sick card." I am sick. Sorry that you do not understand that. Unfortunately I barely have good days. I do not bother you when you lay in bed for days because you have a cold or when you complain loudly when you cannot stop coughing from the cold. Why must you bother me about what I do? Just leave me be, let me have my sick days, my "lazy" days. I do the best I can. I can promise you there are days when I feel like absolute crap but I am still out there going to class, walking tons, cleaning, making dinner, babysitting, all without complaining. You have no idea what it feels like to have to stop and rest after walking for a couple minutes because you're out of breath. You focus on you and I will focus on me.
Love,
Chelsea

Sorry y'all!

Hey y'all! I have been really slack on my blogging game. I just have not felt up to my normal healthy self in such a long time. I actually don't remember the last time I felt "good." I have been struggling to breathe and been so tired. I had two doctor's appointments yesterday. My pfts, while not good by any means, were not much different than last time I went into the doctors and my pulse ox was up. It just seems so weird to me. I feel so bad, like so awful. I feel like I can barely breathe. It seems like my tests should reflect that. It makes me mad. Of course we talked more about going ahead and consulting with the transplant people, even though my doctor does not think I need one just yet. She also suggested I start sleeping with oxygen. I plan on really stepping my game up, not only with blogging but also with my health. I just have to so something to feel better.

But in other news I went to the library and checked out two books on owning a bakery. I am really going to make this dream come true. I have also been experimenting with different cupcakes.
These cupcakes are Key Lime with a graham cracker crust bottom and the other are blueberry cupcakes with cream cheese frosting. These cupcakes were a hit at my house. My mom downed about 5 of the key lime ones the first night I made them.




I promise y'all I will start blogging more. I'm just finding it hard to write about things when nothing interesting is going on.