Showing posts with label bloated. Show all posts
Showing posts with label bloated. Show all posts

Wednesday, February 12, 2014

You know you're a CFer when...

I haven't seen this done very much so I thought I'd give it a go.

You know you're a CFer when:


  • Your gas can clear a room...or house...or town
  • You groan when you see one line to list your medication
  • You start carrying a medication list with you to avoid said groan. 
  • You groan extra loud (internally of course) when a nurse asks what medicines you are on after you just wrote them all down.
  • You're in the hospital so much that you know almost every nurse and respiratory therapist that comes into your hospital room
  • Even though you're older than 18, everyone assumes you are still a teenager (I constantly get told I look 15)
  • Your stomach bloats out so much that people give you stank looks because they think you're a pregnant teen. (I'm 20 and I'm not pregnant so you can stop staring now thanks) 
  • You can't help but get a little irritated when healthy people act like they are dying when they get a little cold. (don't blame them, they aren't used to not being able to breathe)
  • People give you stank looks for coughing too much in public
  • People ask if you're contagious
  • That first cough when you first wake up sets the tone for how the day will go
  • You make weird obnoxious noises or sing when you wear your vest (oh wait please tell me that someone else does that and I'm not just weird)
  • People always comment on how big some of your pills are and wonder how you manage to swallow them
  • You know when it's time to go into the hospital and even take a packed bag with you when you go to see the doctor
  • You know more about drugs/what they do/ and side effects than most nurses
  • You can ride an IV pole around like no one's business
  • You carry something to do into the bathroom because you'll be there awhile 
  • You stock up on air fresheners for the bathroom but let's be honest...there's no helping that
  • You have a love/hate relationship with your treatments. You hate to do them but if you didn't, you'd feel downright awful
  • You can do a nurse's job without a degree (maybe better than some nurses)
  • You work like dog to gain weight while everyone else works to lose
  • Every one thinks you're so lucky to be able to eat what you want and stay skinny
  • You have a third nipple aka a port (does not to apply to all)
  • You've had so many PICC lines that your upper arms are covered in little dot scars 
  • One of the most annoying sounds is beeping IV machines in the hospital
  • Laughing leads to a massive cough attacks
  • You have had a violent cough attack that your face turns red and makes your eyes watery
  • You've had a cough attack and mucus flew out....and you never found where it went. ( don't lie, it happens)
  • You've had so many X-rays that you'd probably glow in the dark
  • You've tried to trap and blow "smoke" out of your mouth while doing treatments 
  • Those pill organizers just aren't big enough for the job
  • You become a salt shaker when you sweat 
  • You cough up blood around someone and they completely freak out and want to call 911
  • Your fingers look just like ET's
  • You make it up a flight of stairs exhausted and panting...only to realize you have another 2 flights to go
  • Doing treatments involves everything and everyone in a 3 feet radius getting sprayed by medicine particles when you exhale
  • You've used empty saline syringes as water guns
  • You've tried that breathing through a straw because you saw that post about how breathing through a straw is like having CF (then you realize where your thinking went wrong with that idea as you gasp for air)
  • You can be sick, wearing oxygen, on the transplant, and still manage to keep a positive attitude and a smile like I see so many of my wonderful Cysters and Fibros doing. Bless their hearts.
Gosh I might need to do more parts to this list as I'm sure I'll think of more. Make this a list longer and funnier. I'd love to get some input from y'all! Feel free to comment with your "You know you're a CFer when" ideas!

Tuesday, February 11, 2014

Eats like a grown man, looks like a little girl

Hey y'all! It's getting chilly down here in the South! Schools have already been canceled for tomorrow in my hometown. That means every store in South Carolina is out of eggs, milk, and bread. Good thing none of those things are on my list for my big grocery trip tomorrow!
Even though I'm a college student, I like to eat real food. I do not like junk food (no desserts or chips for me! Everyone always thinks I'm weird for that) and I just could not fathom eating ramen noodles every meal. So my grocery bills are a tad high because I like to make good meals every night. I'm learning to shop smart and make my grocery bill as small as I can so if y'all have any suggestions or advice on budgeting groceries or using coupons please feel free to comment. I'm going to keep trying myself and hope I get the hang of it. Maybe I can help another college student out there like me.  Maybe I'll even share some of my college kid recipes.
I have a small accomplishment I'd like to share. I ate 2060 calories just for lunch!!! Oh it's the small things in life worth celebrating haha! That would be a salad, bacon cheddar potato, and 2 chicken sandwiches all from Wendy's. I have the worst luck gaining weight. I haven't gained weight in about 6 years. Even a feeding tube did not put any weight on me! It is just down right impossible. I feel like I will never reach 90 pounds. I'm hovering about 84-86 on a good day. I know CFers have trouble gaining weight but does anyone else have that much trouble? Can anyone relate? Does anyone have any solutions?
Another thing is I've switched enzymes many times due to stomach problems. I've been creon, ultrase, pancrease, and I'm currently on zenpep. My enzymes make my stomach bloat out huge, like 8 months pregnant huge, no lie. I'm embarrassed to walk around after I eat. My stomach also kills me and is very uncomfortable, like severe gas pain inside. Anyone else have this problem? What did you do?
I've asked a lot of questions this post but any help would certainly be a blessing!  Thanks in advance y'all!

P.S. I'm sorry I haven't been putting any pictures in. I have plenty I want to share, but I just do not know how on earth to do that on my gosh darn iPhone.